Showing posts with label Lou Gehrig's Disease. Show all posts
Showing posts with label Lou Gehrig's Disease. Show all posts

Tuesday, November 19, 2013

"The Seabee" Written by: Stacey L. Bolin





“The Seabee”
Written By: Stacey L. Bolin

Veterans Day – Monday November 11, 2013

 

I lay motionless next to my sleeping husband, tears slowly traveling down my cheeks to pool onto my pillow, as the darkness of an evening sky slowly allowed the morning to creep through the window into our room. Outside the wind howled while it danced through the threat of rain and snow upon this solemn day that awaited all of us. In a few short hours another brother-in-arms would be placed into the earth as his soul goes home to be with our lord and savior. A day that we had all been warned about - feared - and prayed that the angels would make an exception and grant us a miracle that once again, this brother-in-arms, would be healed and be as he once was before stricken with ALS (Lou Gehrig's Disease). I try to close my eyes and convince myself that I have only awoken into a dream that is not of any reality and that when I awake again, I would find myself home in our own bed and no illness has taken anyone from us.

 My husband rolls over and pulls me deep within the loving embrace of his arms. A temporary feeling of calm and contentment warms me while I rest my head on his chest listening intently to the sound of his heartbeat. I begin to think about a wife who no longer can do the same – again the tears fight to become present.  I tell myself, I must be strong, that tears must be kept aside, but the pain that my husband’s best friend – a mother’s son – a wife’s husband – a child’s father – a child’s grandfather, will no longer live in this present life and no longer be a phone call away. It gnaws away at my strength exposing my soul to the unanswered questions of what lie on the other side of life. To know that he will always be alive in our memories, pictures and stories provide me no comfort at that moment – I’m angry! – He’s too young! – He fought a war and came home to later have to fight a new war, twenty-two years later, against his health! I just don’t understand! My face remains expressionless, while my eyes tell a different story and reveal that I am overwhelmed with my emotions – but my husband knows and understands my struggle with grief and holds me tighter as he lets out a sigh of sorrow.

 

Outside the bedroom door, the house is still, no movement, no sounds. I wonder if this family is thinking as I have, that it is all a dream and that to sleep is to awaken to the sounds of our brother-in-arms, walking through the front door from a morning of hunting and free from illness. I listen while secretly hoping for those sounds of this man’s life to be upon us once again, but the house remains silent and still inside while outside the wind wraps itself tightly around it. Eventually the family finds their inner ability to rise and prepare themselves for the drive into town for a morning funeral service.

We follow the family in our own vehicle to allow them their privacy. The ride feels longer than ever before as the weather in the area, as we drove to Yale, Michigan, has the same wet, windy and raw, appearance as hunting seasons where I grew up in New Hampshire. I find myself breaking the silence by stating this resemblance that I have noticed and feel it was a way that the heavens were telling us that our bother-in-arms, no longer suffered from the illness that disabled him here on earth. A brief, yet tender smile finds a place on my husband’s face.

Our arrival to the funeral home is met with a friendly and professional staff member who is both kind and focused while guiding us to our parking location while arranging the car line to prepare the funeral procession. My husband parks the car where instructed and then sits for a moment to collect his thoughts. Without any words - I reach out to touch him – I’m there for him. He is suffering a tremendous loss and I feel helpless when I finally muster up the ability, through the knot in my throat, and ask is there anything I can do for him. In a whisper filled with deep sorrow he replies, “You can bring my best friend back.”

From the area that we chose to sit, during the service, you could see our brother-in-arms at rest and dressed in his military dress blue uniform.  The minister speaks from quotes from the bible, but I can’t hear the words through the noise of a thousand questions all screaming for an answer in my mind. My husband sits next to me as we hold hands. For years we have had our own way to talk to each other through various grips, and this time would be no different as we helped one another deal with the loss of our dear friend and its effect on the family and friends that remain behind. Special moments were added to the service with music chosen by the wife and her family. How beautiful it was, and I couldn’t help but wonder how difficult it must have been on all of them to go through old pictures and then find the right music. They certainly had more strength than I. As the service concluded, the congregation stepped into the adjoining lobby as the attendants and the minister prepared for the final journey. As I stood in the lobby, trying to console my husband and a favorite uncle of the family, a player grand piano, began playing a melody I knew all too well and was a symbolic piece, and an emotional trigger, to a time when I myself struggled with a Cancer illness and feared what would become of my family if a cure was not found.

 I’m listening to this right now, to help with the next several paragraph that for some reason my mind wants to lock away and not deal with the pain. For me, I have found that writing is the only way I can share my true feelings –especially when it comes to a deep feeling of sorrow. So hold on and listen with me as you read. https://www.youtube.com/watch?v=kcdcwnBUowc&list=PL752FB5D5DEBCB651

I saw years of great times, hardships, losses of friends and family, births of my boys, life in the military, California, Port Hueneme, and the first time I met my husband’s best friend and his wife Shelly - my whole world. I couldn’t hold back the emotion that was rushing in like a small town in the path of an unexpected flood. I looked up at my husband as my eyes welled with tears and told him, I needed closure, I needed to say what I needed to say, before his friend was lay to rest and I needed to do this on my own and alone.  Quickly I excused myself through the crowed room to the back and entered through a set of open doors to find myself standing beside the open casket.

Our friend was gone, and I felt so guilty that a cure had not been found for him. I put my hand on his and found the ability to just speak out loud through the cracking of my voice and from my heart. The funeral tenant granted me a moment with him and stepped aside to move the lovely arrangement of flowers to the side of the casket as the minister watched on.  I’d  like to think they knew I had not taken this moment during the viewing the day before, but desperately needed this time to help me understand what was happening and chose to deal with the situation instead of trying to block pain and hurt like I had taught myself to do for many years. I began to just let my feelings out and speak.

“Fred, I don’t know what I’m supposed to do? I don’t know how to help these people though this, but I’ll keep my continued promise to you if you keep your promise to me. I will do all that I can to help your family and watch over them, if you could just find the strength up there to watch over Ron and help him fight the war of a memory of war in his mind and the pain of losing you. He is such a wonderful person and no matter what happened over there in the Gulf, and I may never know, the fears that you both faced together, the worries of not knowing if you’d come home, what I'm trying to say Fred - he still needs a guardian angel and that angel has always been you.” I’d like to think that somewhere deep down I heard an heavenly angelic voice that replied, “Thank you and I will always be there.”

I then leaded over him, and as I had done during that July morning when I had last seen him, before my family and I headed back to Maryland, I found the strength to give him a good-bye kiss on his forehead and said, “I love you Seabee, you are so going to be missed, rest in peace.”

I wiped the tears from my eyes and then turned slowly to walk back to find my husband standing with several other veterans who were asked to be pallbearer’s. There was something about my husband, that captured my attention, and help me focus and finally see completely what it was and still is, that has me so deeply in love with him. I saw it, a moment in time that I had not seen for many years. A moment of the first time I feel in love with him mixed with a special ingredient. If you had ever been in the military you would know what the special ingredient is, as the other veterans wore the same – Military Bearing. You could feel the sense of honor, duty, pride, respect, and determination - that no matter what lay outside those doors of the building that day, no matter the weather, no matter what dangers may linger, they would see that this fallen brother-in-arms would reach his final destination.

Only the pallbearers were asked to accompany the funeral director back into the room the same way that I had chosen to enter, while the entry doors to the parlor still remained closed. I stood there, looking at the numerous faces of grief, by friends and family members that wore shrouds of bravery, to ward off the sorrows temporarily, as they anticipated the flag draped casket that would soon appear as the doors opened. They stood in silence as they watched as the Veterans escorted their brother-in-arms through the lobby. The Veterans made no eye contact as they slowly and carefully made their way to the gloss black hearse that awaited them outside. Never once loosing focus, their military bearing was at full attention to uphold the honor and the duty that had been bestowed upon each of them by the grieving family.

As I stood by the doors, I watched my husband’s face try to fight the pain he was feeling as they closed the doors to the hearse. I wanted so much to go over and put my arms around him and tell him that everything would be OK, like he had done for me for so many years, but this time it wasn’t OK - His best friend and war buddy would not be there when he needed him or just needed to hear his voice.  I knew that the only thing I could give him at this moment was time. There was nothing I could say or do as the hardest part was still ahead of him.

We walked back to our truck and waited for our time to pull into the funeral procession that would follow the hearse to the cemetery. As we drove, I saw something I have never in my life seen before. Vehicles one-by-one pulled off to the side of the road. There were no cars in a hurry to get anywhere. Nobody cut through the line. These people, who may or may not have even known who lay inside the flag draped casket, still honored him, as they sat on the side of the road in their cars with their heads down. I don’t know if they did this because it was Veterans Day, or if life there is just different and it didn’t matter what day it was. There was just a sense of utmost respect that I had not seen like that - in person – ever.

We arrived at the cemetery where the family had already taken their seats beside the grave site. My husband, without delay, immediately found his place at the head of the casket. I stood beneath a rainbow colored umbrella that clearly was out of place against the traditional brown and black ones used by others. I watched as the Veteran’s lifted the casket and carried it against the wind and the rain. None of it seemed real as I told myself to make a mental note of what I was witnessing. My husband, in spite of his daily back pain, with no jacket, no rain coat, no protect from the elements, wasn’t feeling anything but sorrow and the determination to be sure he would help be the one to see his best friend laid to rest – anything else – didn’t matter.

It was a full military funeral, and I wouldn’t have expected anything less. As the Active Duty military personally took their positions at the casket, the command was given to stand and those who were military or retired military could render a hand salute while the soft somber tone of taps being played accompanied the wind. Every one of us Veterans stood at attention and provided our best hand salute. I don’t remember when the orders for the 21 gun salute was given, but I do know that it is a haunting feeling that I had only felt one other time when my step father George had passed away in 1991. Something about that sound makes things seem so final, and that all that is left are the memories and mementos that are left behind.

To watch the strength of this now widowed wife, and longtime friend of ours, accept the perfectly folded flag seemed more like a movie that my brain kept waiting for the film director to yell, “Cut…that’s a wrap.” I didn’t want to leave; I didn’t believe that any of this was happening and I just wanted some kind of sign to tell me that although our dear friend has passed, that he no longer suffers from the horrors of ALS. I believe that those who have passed on have ways of connecting to us, we just have to be opened minded rather than brush things off with the thinking it is merely a coincidence - it's not, it is so much more. I got my sign as I had hoped for as I sat with my husband at a banquet hall at their local golf course. The family decided to put together a gathering for friends and family to come together to enjoy a warm meal and talk about the life and times of their lost loved one.

I have five loves, my husband, my two boys, family, and snowflakes. As my husband and I sat at a table drinking coffee and speaking with the minister, something outside the picture window had caught my eye – snow – the cold and dreary rain had turned to a soft billowy snow that danced effortlessly upon the wind and feel softly on the autumn leaves that had not found their way onto the earths floor.

My question had been answered. Rest in Peace – Fred, Rest in Peace.

Fred and My Husband Ron - Feb 2010
 

Monday, April 16, 2012

Their Past, Their Present - BUT WHAT ABOUT THEIR FUTURE!?

It's time to be the voice for their change and my voice starts now
As you remember a few weeks ago I had written a blog called "I Want to Know Why!?" I didn't realize that blog was going to open a door to a new journey that will challenge all that I am.  As you know I wrote about a dear friend of my husband who is now battling Lou Gehrig's disease. I was heartbroken, as anyone who knows about this illness knows there is no cure at this time. For me, a huge question began to beat to the rhythm of its own drum when we were told that the VA found him 100% disable. The VA is involved? I immediately thought, that means its Service connected, but how? I also receive VA Benefits and listed disabled. To look at me, you'd never know what I suffer from on a daily basis, but believe you me, it is nothing like what our friend and his family are facing. Something wasn't right, but I put the notion of foul play into the back of my mind for a later date. My womanly intuition told me this was going to be a topic that was going to come knocking on our front door.
We were honored his friend, who I am going to call, his brother, as they are "Brothers in Arms", and his family came to spend a week with us, just before Easter, and we enjoyed the time together to the fullest. I will say I am so glad that my husband was forewarned about the changes his brother is faced with, as I think if we had been told when they got here, it would have been very overwhelming to see and understand. Knowing of his condition a few weeks in advance gave our family time to get familiar with what was happening. His brother's wishes were to see things while he still could, and so we had planned our trips quite strategically so that his brother would not tire so easily, yet could take it all in. Our first of two big trips was on Sunday, April 1, 2012 - The Battlefields and memorials of Gettysburg and the other was on Tuesday, April 3, 2012 - The Air and Space Museum and the National Archives to see the Declaration of Independence, The Bill of Rights, and The Constitution. Both trips were very educational and memorable, but the best memorable moments came in the form of two men sitting on a retaining wall and in the backyard around our makeshift fire pit. Against my will and feared crying in front of them, I managed to say contained as I watched their body languages and listened to the two of them, as they sat for hours on end, reliving their early military days and discuss limited memories on an event that changed both their lives, but just didn't realize how much until 21 years later. They spoke of both the good and the bad times they had faced, with the worst of all - being in the Gulf War during Desert Shield and Desert Storm from August 27, 2012 - April 11, 1991. It was the comment they shared at once, before they quickly diverted from further discussing it - Being covered in the black soot from the 700 or so, burning oil fields and that never ending taste in their mouths - burnt oil.
Now you all know that I am big one for dates, events, and how they seem to all relate years later. Here it was, Friday, April 13th. Now I used to be one that feared Friday the 13th, until my younger son was born on Friday the 13th in June of 97. This day is now a blessing as my husband and I had created another life after being told we couldn't have any children. This was also an anniversary time frame for my husband. It had been 21 years since that moment when my husband returned to his base command, on April 11, 1991 to be exact, after being deployed to Saudi Arabia nine months earlier. It is not a time in his life that he shares willingly with anyone, with the exception of his "Brother in Arms". I didn't know my husband then, but it was during this time of their return that I was stationed at the same base going through my "A" school training as a builder.
Now have you ever heard of someone being triggered to remember something that for years has blocked for reason/s often stemming, or could be stemming from some form of Post Traumatic Stressors? Remember what I had said about the womanly intuition - well the topic didn't knock on our front door, it found a place in our mailbox instead.
On April 13, 2012 a letter arrived in our mailbox. In this letter was a past that my husband had chosen to block out, with the hopes to never relive the events, especially the dates that were indicated: Feb 24, 91 - Feb 28, 91. My husband not knowing what the letter had contained, asked me to read it while we drove to the Anne Arundel County Fairgrounds to do our volunteer ground maintenance. Our Job - cut and weed whack the overgrown grass for the flea market the next day. As I unfolded it, I immediately noticed it had been addressed to my husband’s parents as the author of the letter did not know of my husband’s whereabouts in the world.
As I read the letter out loud, my heart began to pound harder and harder wanting to burst through the walls of my chest. Fear was not only standing in front of me, it had grabbed me by the shirt and was doing its best to take me out. My breath quickened and my voice gone - It was bad news from one of the men he was with in Saudi Arabia. He too is also very sick and has been for years with what appears to be related to the Gulf War and where they were.  He spoke of an event that I could see stealing the smile from my husband face as he drove. It was a memory that had been locked far deep inside his mind and was rushing back to shake him up once again. This memory - It was on February 24, 1991, his 21 birthday, and it could have been the date of his death too. Upon reading the materials the letter contained, I was learning the complexities of the man that sat beside me and the pieces of a scattered puzzle, which almost result in our divorce, that began to come together providing answers to many questions. I knew I had to find out what happened to the men of Battalion 5.
How haunting a feeling it was, as I began to research chemical warfare in the Iraqi war and the quiet destruction that would plague the troops years later, after their returned to American soil. They had no idea they were about to face the worst war ever, the war within ones mind, body and soul and this was just beginning. The Military kept blind eyes and deaf ears to endless requests for answers. This time, those answers will be found, not only for my husband, it includes a battalion of men who, for all we know, have their own struggles and don't have the voice, the strength or the finances they need to band together. From one Seabee to another - I will be your voice. Today starts a new quest in finding the green machine from Naval Mobile Construction Battalion 5, that had been part of Desert Shield/Desert Storm 90-91. My husband and I have created a Facebook Page so that this list of men can all be checked as found.  https://www.facebook.com/#!/pages/Looking-Four-Nmcb-5-Desert-Shielddesert-Storm-90-91-Urgent/374788309226812 If you have any information on the whereabouts of these men you can send an email to: nmcb-five90-91@hotmail.com Subject: GWV 90/91











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Wednesday, March 14, 2012

I WANT TO KNOW WHY!?!?!?!?!?!?!?

I WANT TO KNOW WHY BAD THINGS HAPPEN TO GOOD PEOPLE!!!!!
“Stacey, only people who are mad write in bold letting that is capitalized.”  Well, guess what....I am not only mad...I am pissed!  I want an answer and not the basic answers of "That's life, things happen, God has a plan, and all that happy jazz."  Today that is not good enough for me! When I went through cancer treatments 18 years ago, I feel that I had an advantage I knew what my cure was. But what if your doctor told you there is no cure.  My philo on that one....BULL!! My illness, I was told that there was nothing more they could do. Well guess what - here I am 18 years later. There is a power in us all. Don't get me wrong, conventional medicine also helped out, but for me, there was something special inside me almost like a peaceful guidance to keep my emotional adrenalin at bay. I incorporated a positive power of thinking and there were so many prayers out there from friends and family.  Now I am sure you asking, "Where are you going with all of this ranting and anger?"
Two nights ago my husband and I learned that a very dear family member is facing, what soon could be, the fight of his life. We were in total disbelief. "HOW COULD IT BE!? AND WHY HIM!?" He was told that he has Lou Gehrig’s disease and/or is symptomatic that follows the guidelines of this terrible illness.  As soon as the shock wore off, I went into fight mode. I don't know why, but something in me says there is a window of opportunity that will lead to his recovery, but what - that I don't know yet and the storm of crazy dreams has once again begun. As much as I got upset with the weird dreams and strong intuitional feelings all of my life, it’s been rather quiet in my mind for the last year, however since this bit of information had been brought to my attention well let’s just say, I'm glad they are back. I know I'm supposed to help and have the ability to help, but I don't have all the answers yet and those of you who know me, when I want an honest answer and know there is one, but is not offered to me....I get very very temperamental. Yeah, temperamental - that's a good word for it. Mild in description, but good, as crazed woman on a mission would freak some people out. (Smile).
My heart tells me he will recover, but when I see him I’ll know more and that more, I hope, will be the peace of knowing he’ll be the one that finds a cure. He is a Seabee and Seabee’s FIGHT! We also stand by each other and have a “Can Do” spirit. He was in Desert Shield and Desert Storm, if he can battle that – HE CAN BATTLE ANYTHING! I am asking for your prayers that he too will be blessed with a miracle. I have also asked my guardian angel “Rose” to give him the same strength she gave me and that he WILL see his daughter graduate and get married! “A guardian angel Stacey, get real. There is no such thing.”  Oh my, do you really believe that? Well I am a LIVING proof that sometimes you have to be able to BELIEVE in a power that you can’t see. It worked for me and a friend of ours out west who was diagnosed with breast cancer. 18 years later, and she also relapsed half way through this time frame….SHE IS STILL HERE TOO!!!!
So here we go again. Last time I questioned the possibilities of a higher power, something happened and I had the shock of my life. Here is the sign I got and I will never question the big guy again.
One night I woke, and felt as thought someone was watching me. I got up, and tried to walk through the flickering light of a television station that had gone off the air. Our bathroom is on an angle from our room. I decided to leave the door open as everyone was asleep. I frozen when I looked into my room and saw him. Do you see him in these photographs? Tell me what do you see? I took one photo with the lights on to proved this photo is not doctored in anyway. It is only a quilt on my bed. See photos below.

With the bedroom light on.

when the light was off, the area at the end of my bed seemed to have a light glow to it.
DO YOU SEE HIM????

When the snow of the tv station was light, this is what I captured.
 I took a lot of pictures as the image stayed there as long as I sat there.

“God, it’s me again. You’ve proven to me that there is hope and miracles do happen in this world. Show me that it is still there. Please bless our friend and his family during this time of illness and bestow upon them all of your strength, power, and guidance to see them through. Let them know that they are loved by many that they are important to those around them and they will prevail!”